After almost 8 months of testing, no answers, more testing, bone marrow biopsies, and even more testing, we have answers.
Answers that I never wanted to have.
Monday morning, Kate was diagnosed with Congenital (from birth) Amegakaryocytic (lack of megakaryocytes or large cell-making cells) Thrombocytopenia (without platelets) - a very rare (I'm talking less than 100 known cases in the entire world) genetic bone marrow failure.
Kate needs a complete bone marrow transplant as soon as possible.
We are shocked, terrified, heartbroken, and so upset that our sweet, innocent baby girl is about to be put through so much.
However, we realize we are also blessed. We have a support system like none other, live 15 minutes away from the best pediatric bone marrow transplant center in the country, have an amazing team of doctors, and most importantly, we serve a mighty God who will wrap His arms around my family and carry us through this journey.
I will update with more information as it comes in. Right now we are waiting for insurance approval (seriously insurance, we are talking about my baby girl - get on it so we can get started) so that the transplant team can contact us and start the process. Once Kate is "typed" we will start the wait for a donor.
I claimed this verse during my struggles with infertility and it seems fitting to claim this verse again. I feel like it is our verse for Kate, we just didn't know it would be her life verse when we were longing for a child.
"For I know the plans I have for you," declares the LORD, "plans to prosper you and not to harm you, plans to give you hope and a future." Jeremiah 29:11
We are asking for any and all prayers. Please talk about Kate - add her to your prayer list, email your granny that prays all day long, get the word out.
Kate needs it.
Kate is a fighter. She proved that a while ago. I just wish she didn't have to fight this fight.
I know I have kept quiet about our journey to this point - I will post a bit more about how we got to this diagnosis later this week.